Batten Disease Support and Research Association – The Batten Disease Support and Research Association (BDSRA) is the largest support and research organization in North America for families that have children with the disease. We currently serve over 1,200 families in the United States, Canada, South America, Australia, New Zealand, and South Africa, just to name a few.

Batten Disease Support and Research Association – Australia – An international support and research networking organisation for families of children or young adults with this inherited neurological degenerative disorder, know as Batten Disease

Beyond Batten Disease Fondation – Beyond Batten Disease Foundation was established to eradicate Batten disease. We seek to accomplish our mission in two ways: 1.Raise awareness and money to accelerate research to find a cure for Batten disease. Learn more.2.Develop an easy and inexpensive blood test to detect the gene mutations for Batten disease, and hundreds of other rare conditions like it, that claim the lives of thousands of children each year.

Nathan’s Battle – The Nathan’s Battle Foundation has been established to aid in the development of therapies for Late Infantile Batten Disease. The foundation utilizes entrepreneurial spirit and techniques to seek out and develop promising therapeutic approaches by fostering collaborations between basic research and therapy development mechanisms. The foundation accomplishes this by identifying and filling gaps in the development process by delivering resources to transform ideas into therapies.