Family Let Down After Fragile X Trial Halted

3rd June, 2013

7 Jun 2013, Fragile X, News of the Week, Newsletter

[Source: Disability Scoop]

After seeing dramatic improvements while participating in a drug trial, one family is unsure what the future holds for their boy with fragile X syndrome now that the trial has been canceled.

Logan Kisamore, 9, went from speaking just a few words to having a vocabulary of 150 to 200 while taking a new medication as part of a drug trial conducted by Seaside Therapuetics. He also started to form friendships with his classmates for the first time, according to his mom, Patricia Kisamore.
But now the trial has been halted, leaving the Baton Rouge, La. family worried about the future.
“I felt like a rug had been pulled out from underneath me. I felt like I had been punched in the stomach,” Patricia Kisamore told WVLA NBC 33.
Though she remains optimistic that her boy will beat the odds, Kisamore said that other children who have gone off the medication have stopped improving.
Read the Rest of this Article and Watch the Story on Disability Scoop

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